Montana's newborn screening program depends on speed to save babies from a plethora of deadly disorders at birth. But the Montana Department of Public Health and Human Services fought for 10 months to keep hospital's performances hidden from public view, before finally agreeing to release the data with hospital names. And the results are not good, highlighting the importance of transparency and accountability to ensure an effective newborn screening program for Montana families.
Newborn screening programs saves lives when healthcare facilities act swiftly and follow protocol, protecting newborn children from dozens of life-threatening conditions, and reassuring a family's first hope that their baby is healthy. But the process can become deadly when protocol is not followed, and standards for efficiency fall by the wayside.
If you’re a parent with a child who has had a particularly good, or bad experience with newborn screening in Montana, we would love to hear your story. Please send us an email to: firstname.lastname@example.org.